The family of Archie Battersbee have said they “want something good to come out of this tragedy” as they vowed to call for “change”.
The 12-year-old died on Saturday in the Royal London Hospital in Whitechapel, east London, after weeks of legal wrangling.
In a statement, released through the Christian Legal Centre, which has been supporting the family’s case, the family said: “Yesterday we lost our beautiful boy, Archie. He has fought against all the odds since April, and we are so proud of him.
“We are thankful for the huge amount of support we’ve received from so many different people. We are grateful to our legal team and others who have stood with us as we have faced these difficult challenges.
“We want something good to come out of this tragedy and the horrendous experience we have been put through by the system.
“No parent or family must go through this again. We have been forced to fight a relentless legal battle by the Hospital Trust while faced with an unimaginable tragedy.
“We were backed into a corner by the system, stripped of all our rights, and have had to fight for Archie’s real ‘best interests’ and right to live with everything stacked against us.
“This has now happened too often to parents who do not want their critically ill children to have life-support removed.
“The pressure of the process has been unbelievable.
“There must be an investigation and inquiry through the proper channels on what has happened to Archie, and we will be calling for change.”